- Health Sciences Building, 155 College Street, Room 574
- JCB Event
- February 13, 2019 from 4:10pm to 5:30pm
Don Willison, MSc, ScD, Associate Professor, Institute of Health Policy, Management and Evaluation, University of Toronto
Diabetes Action Canada has developed a data repository to support research, quality improvement, and service that will improve diabetes care. At the core of the repository are de-identified but linkable electronic medical records (EMRs) from family practices that are participating in the Canadian Primary Care Sentinel Surveillance Network (CPCSSN).
We recognized the importance of gaining the trust of patients and the health care providers whose data are being used, that their data are being managed responsibly in the best interests of patients living with diabetes. Therefore, we developed a principles-based governance framework and operational model, with a strong focus on patient participation in the governance process.
In this presentation, I will describe how we developed our principles and operational model for governance of the Diabetes Action Canada data repository.
This seminar is free and open to the public. It requires no registration, and will also be webcast live.