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  • February 14, 2024 from 4:00pm to 5:00pm


JCB Bioethics Seminar Series presents…

‘An Introduction to Improving Palliative Care for Persons with Intellectual and Developmental Disabilities (PWIDD)’

Speaker: Bob Parke


The seminar will highlight the history of our project to improve palliative care for people with intellectual and developmental disabilities. The presentation acknowledges the trauma history that survivors of institutionalization present when needing health care. Taking an equity perspective our project seeks to address the disparity in palliative care services for people with IDD. While representing a relatively small percentage of the overall population PWIDD are often overrepresented in emergency departments and dying in locations where they are unknown and don’t want to be.

The presentation will introduce tools and practices that will help with earlier identification, assessments and enhance the ability of PWIDD to participate in their care planning. An over arching theme of our work and the presentation is the importance of collaboration between sectors of care, development sector, primary and palliative care. As an outcome we hope attendees will engage with us and become allies in addressing the care needs of people we often work with.

Additional Details:

The event is free and is open to the general public.